[HTML][HTML] Systematic review of conceptual, age, measurement and valuation considerations for generic multidimensional childhood patient-reported outcome measures

J Kwon, L Freijser, E Huynh, M Howell, G Chen… - …, 2022 - Springer
quality-adjusted life years (QALYs) in cost-utility analysis. Negative values are theoretically
… Cultural issues present in the initial instrument development (as opposed to subsequent …

[HTML][HTML] … of life in psychosocial and mental health disorders in children: a comprehensive overview and appraisal of generic health related quality of life measures

JO Mierau, D Kann-Weedage, PJ Hoekstra… - BMC pediatrics, 2020 - Springer
… of these 22 generic instruments available to measure QoL in children with … quality of these
instruments found 195 suitable papers, of which 30 assessed psychometric quality in child

Parent-observed thematic data on quality of life in children with autism spectrum disorder

A Epstein, A Whitehouse, K Williams, N Murphy… - …, 2019 - journals.sagepub.com
… and there has been no quality of life measure developed for this population. Our … using
generic instruments. … This preliminary study sought to first establish the primary domains of QoL …

Development of a new quality of life measure for Duchenne muscular dystrophy using mixed methods: the DMD-QoL

PA Powell, J Carlton, D Rowen, F Chandler… - Neurology, 2021 - AAN Enterprises
… Existing, popular generic preference-based measures such … (≥7 years of age) and to
assess its preliminary psychometric … , considered independent from any particular theoretical, …

[HTML][HTML] Health-related quality of life in children and adolescents with epilepsy in Enugu: Need for targeted intervention

AE Aronu, N Uwaezuoke, JM Chinawa… - Nigerian journal of …, 2021 - journals.lww.com
… were significantly more among subjects aged 8–12 years/13–18 … oriented towards ensuring
the optimal health-related qualityGeneric measures assess and compare health status in …

[HTML][HTML] Association between the level of physical activity and health-related quality of life in type 1 diabetes mellitus. A preliminary study

A Domínguez-Domínguez… - Journal of Clinical …, 2021 - mdpi.com
… has an increasing prevalence driven by a complex interplay of … by premature mortality
and low quality of life due to its … -5L): is a generic instrument to measure self-perceived health…

[HTML][HTML] Mediating effect of motor competence on the relationship between physical activity and quality of life in children with attention deficit hyperactivity disorder

R Li, X Liang, F Liu, Z Zhou, Z Zhang, Y Lu… - BioMed Research …, 2021 - hindawi.com
Children aged 6-12 years old were recruited from the … Our findings provide preliminary
evidence regarding the … of the pediatric quality of life inventory™ version 4.0 generic Core scales …

Health-related quality of life in children with chronic illness compared to parents: a systematic review

CA Hall, C Donza, S McGinn, A Rimmer… - Pediatric Physical …, 2019 - journals.lww.com
… The child self-report is used with children 8 to 12 years old … questionnaires and health surveys
at the initial appointment, … in generic HRQoL scores between self-reports of children with …

[HTML][HTML] Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall …

L Coombes, K Bristowe, C Ellis-Smith, J Aworinde… - Quality of Life …, 2021 - Springer
… to a theoretical framework. These low scoring studies were included in the review as it is
often difficult to determine whether quality scoring elements were not reported rather than not …

Self-management, self-efficacy, and health-related quality of life in children with chronic illness and medical complexity

L Bravo, MK Killela, BL Reyes, KMB Santos… - Journal of Pediatric …, 2020 - Elsevier
… Both, parents and children, completed the measures, which … They are striving for best practice
and are goal-oriented. The … preliminary findings support the need to assess and develop